Diabetes
Recordkeeping
Record
keeping is probably not
one of the activities
you would list under
"Exciting Things to
Do in This
Lifetime." It is
definitely not as
exciting as winning an
Olympic medal, winning
your Friday night ball
game, or kicking your
brother's behind at
video games. It doesn't
measure up to the
vacation you've been
thinking about for two
years or even a weekend
at your grandparents'
farm. So, if there's no
excitement in record
keeping, why are we
surrounded by people who
keep them?
For
many people, record
keeping is just part of
business or day-to-day
life. Librarians have to
keep records of what
books are in the library
and who has borrowed
which book. Teachers
keep records of your
grades. Parents record
what checks they write
to pay for what on which
day. Scorekeepers keep
track of who makes which
goal in what game.
For
some people keeping
records can be exciting.
For coaches and
athletes, it's a way to
keep track of what works
and what doesn't work.
It's a way to win. For
researchers and doctors,
it's a way to figure out
why a disease acts the
way it does, and to
learn how the human body
can fight that disease.
Records
are a way to solve
mysteries. Imagine if
you had spent years
looking for the cure for
some disease, say
diabetes for example,
and suddenly by studying
the records of your
research you found the
answer -the cure. There
is nothing boring about
that!
For
someone with diabetes,
record keeping
definitely needs to be
part of day-to-day
living, business as
usual. But it doesn't
have to be boring. There
can be an exciting part
to it, too. When your
records help you and
your health care team
figure out why your
blood glucose (sugar)
drops every day at 4:00
and then how to change
that pattern, that's
exciting. Or why your
blood glucose zooms out
of sight every Wednesday
and Friday after lunch
and what to do about it,
that's exciting. Maybe
it is not as exciting as
winning an Olympic medal
or taking a dream
vacation. But these
days, you have to take
excitement where you can
get it.
Your
Own Mysteries
People
with diabetes keep
records so they can
solve mysteries like
these.
- Why
do I wake up with
low blood glucose
almost every night
at midnight?
- Why
do I go low
sometimes when I
play soccer or
basketball and
sometimes I don't?
- How
much insulin will my
body need to take
care of a hamburger,
bowl of ice cream,
or a salad?
Why do I wake up
with low blood
glucose on Saturday
and Sunday, but not
weekdays?
- Do
unidentified flying
objects come to
earth to fill up
with gas?
Okay,
maybe you can't solve
that last one, but
solutions to those other
mysteries start by
looking at your records
for the last few weeks.
To
know what to keep track
of, think of the things
that affect the control
of your diabetes.
- Food
(pizza, carrots, ice
cream, bananas,
steak, cookies,
milk, or anything
with carbohydrates,
calories, fats,
proteins, and even
skipped snacks and
meals.
- Insulin
- How much and when
(If you have type 2
diabetes, you get to
skip records on this
one)
- Exercise
(soccer, basketball
games, neighborhood
touch football
games, extra hard
workouts in physical
education class, or
a canceled PE class.
- Stress
(a tough history
test, performing
with the community
theater, death in
your family, and
even positive stress
like going to the
state capitol to
receive an award
from the governor)
Pencils
to Software
Records
can be kept in a variety
of ways. The important
thing is to find a way
that fits you and your
daily activities. Find
something that is easy
for you and won't get
lost.
Logbooks
-- old-fashioned pencil
and paper -- work for
some people. You can get
a logbook from your
health care team. Or you
can design one yourself
with a notebook,
stickers, colored paper
and pens, glitter,
whatever pleases you.
Just be sure you have
places for the date,
time, food, insulin
doses, exercise, and
results of blood checks.
Most glucose meters will
store the results of
your checks, but if
you're using a logbook,
it's important for you
to write those results
in the book.
It
might be helpful to go
online and find samples
of pages to put in your
logbook. You can print
them out and be ready to
go or you can use the
ideas to design a page
to fit your needs.
If
you find sample pages
online or design your
own page on a computer,
you can create computer
files to record your
information. If you
choose to do this, you
need to be sure you will
be able to get on the
computer every day to
record your info. If you
are away from the
computer for a couple of
days, you can keep track
on paper and then enter
it later. But if you
can't get on the
computer very often, it
might be easier to just
use a logbook.
It's
also a good idea to
print out your
information twice a week
just in case you have a
major computer crash. Or
in case your sister
decides to "clean
up" the computer
and deletes your files.
Many
meters will let you
download your blood
check records if you
have the right cord, the
right software, and the
right computer. Check
with the manufacturer of
your glucose meter to
see if you can make this
work for you. Remember
to record the other
important pieces of your
daily activities with
the info downloaded from
the meter.
No
matter what kind of
meter you use, no matter
how you choose to record
your numbers, remember
this: those numbers
don't do you any good if
they're locked up in the
memory of your meter. So
check, record, and learn
from the information you
find.
Well,
Sherlock, Now What?
Once
you have collected this
information, you and
your health care team
can use it to solve some
of your very own
mysteries. You can look
for patterns and use
your information to make
adjustments. After your
doctor looks things
over, she might tell you
to change an insulin
dose. Or have you try
another kind of insulin.
If you see that every
time you eat pizza for
lunch, your blood
glucose rises, you might
choose to eat something
else, make adjustments
in your insulin, or
exercise. You see, those
blood checks you do can
help you decide on
immediate treatments for
high or low blood
glucose. But the records
of those blood checks
can help you see
patterns, solve
mysteries, and make
adjustments to maintain
even better control.
When
you go to the doctor, be
sure to take your
records with you. He
will want to look them
over and talk with you
about them. Maybe he'll
suggest adjustments.
Maybe he'll just tell
you how well you're
taking care of yourself
and your diabetes.
Sharing
your records with your
health care team gives
you the chance to think
like a doctor. When you
hand someone on the team
your records, tell him
or her what you think
might need to happen.
(Like, "I think I
may need to increase my
insulin at lunch."
Or, "My records
tell me three burritos
at dinner is one too
many.") Your health
care team, including
your parents, will be
glad to know you're
thinking about how to
get control. They'll
think about your ideas
and let you know if your
thoughts are on target.
Together, you all can
find a solution that
works for you.
This
is not a test -- no
cheating!
One
of the worst times for
anyone with diabetes is
when you have to hand
over glucose records at
the doctor's office. No
one likes to hear
"Holey moley, these
numbers are sky
high!" Or,
"Looks like you're
eating WAY too
much."
Chances
are, you're not going to
hear this. I mean, think
about it. This is what
your doctor does for a
living - every day!
Surely she sees tons of
log books that are WAY
worse than yours. But,
if you do stun your
doctor right out of her
chair, it's easy to
think that you've
failed. But that's not
true. Remember, this
isn't a test.
Diabetes
is an unpredictable
disease. Even when
you're doing everything
right, diabetes can make
your glucose numbers
look crazy. Your body is
unpredictable, too.
(Like in puberty, your
hormones are out of
control.) As you grow,
the way you deal with
diabetes will change.
The amount of insulin,
carbohydrates, or
calories, and exercise
that works perfectly one
month may not even come
close to what you need
the next month.
Your
health care team doesn't
look at your records to
see if you've been
"bad" or
"good." They
want to know if the way
you've been treating
your diabetes is getting
the job done. If it's
working -- fine, no
changes. But if it's
not, it's up to you and
the team to figure out a
different way of doing
things.
The
only way your health
care team can make the
right changes is if you
hand them the real
numbers. It may be
tempting to leave off
the numbers that are too
high or low and only
write down the readings
you like. Or to knock a
few points off your
readings and make them
more like the ones you
wish you were getting.
That may get you a
"good job"
compliment from your
team. But unless they
know the truth, your
doctor and your team
can't help you really do
a good job of keeping
control.
For
The Long Run
So
when can you stop
keeping records of your
life with diabetes? The
very minute scientists
find the cure.
When
you have diabetes, your
pancreas doesn't work.
So your mind has to work
harder. You have to know
what works and what
doesn't work for you.
You have to know how
close or far you are
from control.
By
accurately keeping
records, sharing them
with your health care
team, and working with
the team to make the
adjustments, your record
log can be more than
just how to deal with
diabetes.
It
can be the story of your
success.
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